Type-1 Diabetes is a beast of a condition to manage. I don’t think that should really be a secret to anyone who has it but to the undiagnosed general public, many seem to think that all it involves is taking the occasional insulin shot, testing your blood sugar and NOT eating sugar. In truth, managing Type-1 Diabetes is a life-long journey (although some would call it a battle) that requires constant monitoring and being on one’s guard. For myself, I was diagnosed at the tender age of 4 years old. Some would throw out a few token “aww’s” at that but realistically, I was too young to really know any different. It was likely easier for me than it would have been, had I gotten diagnosed into my teens the way some friends of mine have. I grew up learning how to manage Diabetes and never had the opportunity to develop “bad habits” that might have made control more difficult in my later years.
But for the folks who are not Diabetic and may not have a family member who is, there is a lot that goes on in the day-to-day steps to control my Diabetes and ensure I don’t lose my eyesight, have an organ fail or have limbs amputated due to poor control. And those are just some of the more knowable potential outcomes. The lesser known and visible side effects are things like ketoacidosis. I had a friend who hosted a guest in her home who was Type-1 Diabetic. He spent the weekend there and the following morning, she and her husband were curious at the fact that he was sleeping in so late. They knocked at the door and inquired when he would be getting up. She remembered him responding “Do I have to,” to which she indicated no and let him go back to sleep. An hour or two later, they were concerned enough that they decided they had to wake him. He had unfortunately locked the door and they had to break their way into the room. He had gone into a Diabetic coma and died. This is the darker side of the condition that people don’t recognize when they’re busy making jokes about “Diabeetus” and thinking it’s because just eat too much sugar or candy. But I digress…
Here are some of the things that I need to stay on constant guard about, when managing my Type-1 Diabetes on a day-to-day basis. This is the stuff that most people don’t realize and that aren’t visible to anyone who isn’t immediately in my household. This list is not exhaustive but is definitely part of my daily routine, which is likely why I’m always exhausted and need several cups of coffee. But here we go:
- Extra and non-Diabetic Medications: This one is a particular sore point for me. Besides insulin injections, I have daily medications I need to take. In early 2010, a regularly scheduled doctor’s visit resulted in being prescribed statins, which are apparently a required staple of grown adults with Type-1 Diabetes to help control cholesterol levels, and Ramipril, which is used to control overall blood pressure and heart health. On top of that, although I came off of this one a few months ago, is a medication called Ezetemibe, which also used for cholesterol control. Although, since starting to use Ozempic in late 2023, I no longer need the Ezetemibe since my cholesterol is essentially a non-concern. Oh yeah, I take weekly Ozempic injections to help blood pressure and kidney health.
- Frequent Blood Sugar Testing: I’m pretty lucky to be on a modern insulin pump. Prior to 2014, I was testing my blood sugars up to ten times a day on average. The problem with that is the inconvenience of having to blood let one of your fingertips when you’re feeling off, no matter where you are or what you’re doing. Flying blind and assuming your blood sugar levels can be dangerous and detrimental to your health. It’s even more inconvenient if you’re on a flight, in a restaurant or in a work meeting where you need to excuse yourself. Even worse was during the dating phase where you’d need to test your blood or worse, if things were heating up and getting physical and you had to ensure your blood sugars were okay to “proceed.” Thankfully, that part of my life is over.
- Constantly Carrying a Man-Purse: What I’ve learned over time and especially in the past year or so, is that I can never take anything for granted. Stepping out of the house to run an errand while thinking “I’ll only be fifteen minutes,” can turn into a medical emergency pretty fuckin’ quick.! Just at the start of this summer, my blood sugars were normal and I had to run to a local mall to pick up one item. The mall is a literal five-minute drive away from the house. It should have been quick, easy and without concern. Once at the mall, my pump started loudly blaring at me. My blood had dropped to 3.4 mmol/L. What should have been a quick, ten or fifteen minute trip turned into forty minutes of sitting on a bench, sipping on a Coke and waiting for my blood sugars to rise enough for me to safely (and legally) drive home. These days, I always carry a small shoulder sling that contains a glucometre, a small first aid kit, wipes and hand sanitizer and at least one (although usually several) bags of non-perishable fast-acting carbs. Which brings me to my next point…
- Keeping family Members from Being Concerned: They say it takes a village and in most circumstances, they would be right. One of my mother’s greatest concerns over the years would be that I would find myself alone as an adult and have to deal with the pitfalls of Diabetes alone. This can be inherently dangerous, since slipping into a serious Diabetic episode when I have no one to help can be deadly. But when I look at that scenario with the trip to the mall, one of the first things I did was text my wife. Not only to let her know I would be a while longer than expected but in the event I found myself in greater medical distress, I had to be prepared to have her assist me in some way, or at least know to go to the hospital to find me if something happened. It can be somewhat exhausting for family, especially considering it isn’t a condition they have themselves. That’s why it’s incredibly important NOT to get testy when they ask if you’ve tested your blood, or eaten enough, or remembered to take your pill. If you have family members that are invested enough to give a shit about your health, you need to soak that shit up and be grateful. Like I said, it takes a village.
- Near Constant Adapting To Changing Conditions: Probably the toughest and most annoying aspect outside of taking insulin or testing your blood sugars, is having to adapt to plans depending on what your body is doing. Sure, everyone does this. Ever had to cancel plans with friends because you had the runs and couldn’t leave your house? Picture that, but on a daily basis. I’ve lost count of how many times I’ve had to cancel coffee or hangouts with friends because I was ill due to blood sugars or my compromised immune system had me dealing with yet another common illnesses that most people would shrug off. Don’t even get me started on wanting to get a workout in but my low blood sugar fucks my night. Or, speaking of fucking up one’s night, imagine wanting to get physical with your significant other, but your blood sugars are too high or too low to allow you to perform as required. Not fun.
- Traveling Becomes a Burden: Honestly, this has become WORSE since starting on an insulin pump. Travel becomes tedious, especially if I should be leaving the province or country. I have to calculate and plan out my insulin intake, use of supplies and alternatives in the event I run out of something at my destination. Will I be able to find what I need? Will I be covered for it, outside of my home Province or while I suddenly find myself paying a significant amount of money out-of-pocket? If a given pharmacy in the area doesn’t carry what I need, can I do without or will I be sacrificing a portion of my trip traveling elsewhere to find what I need? Just two years ago, my continuous glucose monitor expired and the one I had packed for the week failed on installation. My local pharmacies not only had no idea what I was talking about when I tried to purchase more, but I had no means of ordering any. I had to run the pump without CGM for the remainder of my trip.
While some of these can be chalked up to basic inconvenience, some of them can lead to significant issues or even become life-threatening. You know how you always read about these folks who get harassed for parking in a handicap space but don’t “look” disabled? Picture that, with everything but not limited to, everything I listed above. Managing and living with Type-1 Diabetes requires a daily grind where you can never let your foot off the gas. And people often wonder why I’m always exhausted and binging caffeine like it’s going out of style. Don’t eat sugar? Sure. Take daily insulin shots? Absolutely. But trust me when I say that while it could always be worse, Type-1 Diabetes, at least when it’s properly controlled, is a far cry from an easy walk in the park. Food for thought… ☯️
The Blogging Buddhist 