There are a lot of things that happen behind the scenes for someone with Type-1 Diabetes that the average person isn’t aware of. Much like seeing someone park in a handicap spot but yet walk with simple ease, an illness or disability isn’t always obvious to the naked eye. But without standing too high on my soapbox, my point is that there are a number of things that people tend to take for granted that almost seem like a rare treat to someone with Type-1 Diabetes. In this post, I’m going to examine the top ones that are important to me.
A Naked Shower
I should probably clarify that I’m naked for every shower that I take. This isn’t a high school changing room; I don’t shower in my clothes. That’s a story for another day. But what I mean is, having the ability to take a shower without needing to protect infusion sites or adhesive pads. Generally speaking, my insulin pump’s infusion sets are changed out every three days. This is because after three days, insulin begins to crystallize on the plastic based tubing and parts of the infusion set. This can result in an inaccurate delivery of insulin.
My continuous glucose monitor sensor gets changed out once a week. This is mainly because the interstitial fluid and the wound heals up enough that reading becomes difficult. In any event, with one of my cyborg parts replaced every three days and the other replaced every seven days, it’s usually an interesting challenge showering, since some of the adhesive patches will dry up and peel after a hot shower. The result is I usually have to maneuver and cover the injections sites and their coverings so that they get wet as little as possible. You ever try taking a normal shower while trying to keep any one area of your body dry? Not so easy…
Once in a while, an opportunity comes up where both insertions are due for replacement around roughly the same time. On those rare occasions, I get to take a nice, hot shower without any concern about protecting anything on the abdomen. I can effectively shower withy abandon, which one wouldn’t think is a big deal but when you can never do it, having the chance to just let the hot water wash over without concern is a definite treat that the average person takes for granted.
A Decent Night’s Sleep
First and foremost, I need to point out that proper sleep is always an issue for someone with Type-1 Diabetes, whether you wear a pump or not. Between fluctuating blood sugars, fluctuating blood pressure, circulatory issues that cause your arms and legs to go numb and restless as you sleep… The list goes on. Tack on my PTSD and the frequent repetitive nightmares and you’ve got a recipe for shitty nights. I have, on occasion, had the opportunity of sleep well throughout an entire night but these instances have almost always included some exterior assistance, like melatonin or a few fingers of whiskey.
Wearing an insulin pump presents its own unique set of challenges during sleep. While I always make a point to wear shorts or pyjama pants that have pockets, the pump will often slide out of the pocket during the night as I roll over. What’s worse is if I end up on TOP of the pump. This can be uncomfortable and even painful, especially if I roll over and the pump ends up in my tender bits. Y’all know what I’m referring to. Trying to remain perfectly still during sleep is effectively impossible, which means that under all circumstances, my pump will contribute to waking me up repeatedly throughout the night. So if you’re someone who gets a full night’s sleep, don’t take it for granted.
Eating With Abandon
Before the concept of pump technology and carb counting were brought to my attention, one of my favourite things was eating at a Chinese buffet. I’m one of those fuckers who loves the concept of the fried foods and flavoured sauces and dips that one can only enjoy through Asian cuisine. Nowadays, being mindful not only of what I eat but in what amounts can be challenging at best. Even when I read food labels and calculate based on the amount of carbohydrates they indicate, I hit some obstacles with lows, highs and miscalculations.
Eating out at a restaurant is usually the most challenging, because asking a server how grams of carbohydrates are in the meal you’re planning to order can be troublesome. While restaurant staff are generally expected to have some knowledge about the meals they serve, one must be realistic in just how deep that knowledge goes. It’s different if you’re having something defined, like a fast food burger, where you can usually check their website and get comprehensive nutritional information. But then when you incorporate something loose, like fries, rice or mashed potatoes, calculating the proper amount of carbohydrates and delivering the right amount of insulin is tough. What’s even tougher is if you estimate, then you can’t finish what you’ve bloused for.
Buffets are now an absolute waste of money for me, considering I can’t eat with abandon and have to moderate my portions and calculate insulin delivery. Even protein-based dishes are packed with carbohydrates at Asian buffets, considering everything is usually battered. While pumpkin therapy allows me to live easier with my meal choices (eating a slice of cake in my teens would have been completely out of the question), having the ability to eat whatever one wants whenever one wants without worrying about the consequences is definitively something any non-Diabetic shouldn’t take for granted.
SO, as you can see, there are many things that the average, every day person takes for granted that Type-1 Diabetics are dealing with behind the scenes. And this isn’t an all-inclusive list. People rarely see those aspects and simply assume that as long as we avoid sugar and take our insulin, the ship stays on course. Nothing could be farther from the truth. So if you have the ability to sleep properly, shower with abandon and relax and eat at your leisure, take the time to recognize how blessed you are. While I will always acknowledge that things could be much worse for me, all the little things y’all take for granted are often the things that any other person yearns for. Food for thought… ☯️
The Blogging Buddhist 